Shark Girl by Kelly Bingham is at once My Story and Not My Story. When I first read the book back in 2007, I focused on how much the story felt like mine. It’s true that I did not lose my arm in an animal attack, that I never had to re-learn how to do tasks one-handed, and that I don’t know anything about recovering from such a life altering event. But that wasn’t all there was to the story.
There was also Jane’s desire to live her life without an audience. She doesn’t want to be a hero or an interview subject. She doesn’t want eyes on her as she figures out how to do what she needs to do. But she quickly learns what I have known for a long time: amputees cannot avoid an audience. In his memoir We Should Hang Out Sometime Josh Sundquist said, “That’s what it means to be an amputee: You’re always putting on a show.” He’s right.
The audience might be a quick double take or a curious stare. It might be unnecessary assistance or an admiring gaze. The worst, in my opinion, are the apologetic audiences. The I’m-so-sorry-I-didn’t-realizes at offering the wrong hand to shake and other awkward moments are the story of my life.
In the book Jane gets letters from people who saw her story on the news. She struggles with the idea that she isn’t herself anymore. She is Shark Girl. That’s all people will ever see. I may not have a story like hers, but I do know how it feels to think that you’ll never be able to get beyond what people see. Jane put it this way:
“Missing an arm is like wearing a coat,
a really big, hot, ugly coat
that I can’t take off.
It’s all that people see.”
Every amputee deals with the audience in their own way, I suppose. Sundquist, who had his leg amputated as a child, became a motivational speaker, exactly what Jane in the novel declares she will never be. It took me a while to figure out how I felt comfortable taking on the audience, but eventually I decided to lean in to it. As a teenager I would avoid eye contact with the starers or do something to purposely put them off guard if I thought they were being rude. Though that might have been easier or more gratifying in the moment, I realized that I wasn’t getting anywhere and I didn’t feel good about it. So I started seeking eye contact, answering questions, and sharing more about what it means to be me.
Much like Jane in the novel, I don’t appreciate an audience when I’m figuring out how to one-hand-hack a task I’ve never done before, but honestly, if you want to watch me tie my shoes, I really don’t mind. I’ve tied my shoes enough times in my life that I am completely fine with an audience.